Pediatric CF Education Night
Our Pediatric CF Education night was held in the Puritan Conference Center, Manchester on Wednesday, October 16th. CF Parents, families and friends joined the CF team, and pharmaceutical reps to hear the latest updates and enjoy listening to our amazing speaker, Ryan Barry.
You can follow Ryan on Instagram @Polarbarry
TD Bank Infinity Program
Here is a simple way to help NH CF PFAC raise $’s for our CF community. If you are a TD Bank customer or want to open an account at TD Bank, they will donate $’s to us. See below for details!
Transitions of Care: Rosie’s Thoughts!
Emily interviewed Rosie as part of a program on transitions of care for the North American Cystic Fibrosis Conference. In the video below, Rosie shares her best tips on transitioning from inpatient to outpatient, and transitioning from the pediatric to adult team at Dartmouth!
Pillboxes available at your next clinic visit!
Supported by funding from the CF Foundation, our CF center pharmacists now have pillboxes available during your next clinic visit. Smaller boxes with multiple sections are perfect for pancreatic enzymes or other medications on-the-go. Split into morning and evening, the weekly pillbox is large enough for multiple tablets and capsules (yes, even vitamins!)
If you are interested in bringing one of these home, ask a CF team member at your next clinic visit.
Mindblown! Hands-On Learning Kits Available
The Ins and Outs of
Cystic Fibrosis:
Hands-On CF Learning Kits
MindBlown Kits provide a fun and engaging opportunity to learn about how CF affects the body and what treatments can do to help. Each kit includes hands-on activities to teach about a specific body system so kids (and adults!) can learn about how the body works. A collaboration between Sarah Vooris (mom to children with CF) and child life specialist Torie Miele, the kits aim to explore science concepts, connect them to CF care, and put it all together to increase understanding for patients and caregivers within the CF community and beyond.
Each kit has all supplies needed to make that set of projects. Some supplies (like scissors or tape) are meant to be used for multiple kits. Kits are grant funded and free! The first two kits focus on the respiratory system and germs. Future kit content will include the gastrointestinal system and nutrition, kidneys and blood filtration, the immune system, genetics and heredity, and more.
KIT AVAILABILITY:
Who: Developed for kids 7-13 years of age
When/Where: CF clinic appointments in Lebanon or Manchester, inpatient stays, or by mail anytime by request
How: Connect with your child life specialist directly or via your CF care team.
Designed by CF mom Sarah, and Child Life Specialist Torie
