Chair NH CF PFAC.

Moveapalooza Committee

I am on PFAC because as a person with CF, I think it’s important to share our experiences to help support others in the CF community.

Fun fact, I’ve completed numerous marathons in the US and Europe.

NH CF PFAC Vice Chairperson

Sarah is a mother, educator, advocate, and volunteer. When her daughter was diagnosed with cystic fibrosis as an infant, she shifted her focus toward the needs of those living with CF and the CF community. This change led to various endeavors, including fundraising and advocacy, development of CF educational kits for kids, CF center Patient Family Advisory Council participation, and involvement with the XoC Survey initiative. Sarah lives in Vermont with her husband, Mike, and her children, Regan and Maren.

Fun Fact: I have been lost in Morocco, played soccer in Ethiopia, and have experienced many other big an small adventures ( and misadventures).

NH CF PFAC Board Secretary

Pediatric Cystic Fibrosis Center Coordinator NH Cystic Fibrosis Center

I’m on the board to work with patients and families to find ways to improve the lives of our families in creative ways. Working with the board makes me a better nurse by learning from the true experts.

Fun fact: I had a career in radio before becoming a nurse. If you had insomnia, you could hear me on the overnights at WZLX in Boston.

NH CF PFAC Treasurer and Board Member

I am part of PFAC because I have CF and would like to help others with CF.

Fun Fact: When I was a university professor, I wrote three books on tree identification.

NH CF PFAC Board Member.

Moveapalooza Committee

I am a PFAC member to contribute my lived experience as a parent of an adult with CF and help the DHMC CF community thrive!

Fun fact: I know how to ride a camel.

As the mom of a CF teen, I feel that the other people on the PFAC board and their work have been inspirational and supportive during our family's CF journey. I joined the group as an opportunity to participate in and give back to this community.

Fun Fact: I am a Dairy fanatic, from the cows and their farmers to the delicious products they provide, I am passionate about it all!

I joined PFAC because I enjoy being involved in the CF network, learning new things, and meeting other CF parents and family members..it takes a village!

Fun fact: I would rather be quilting or outdoors on the water any day of the week!

NH CF PFAC Co-Ordinator, mom of 26 y/o w/cf.

NH CF PFAC Board member.

I’m on the council as I believe that the CF community has so much to offer each other. My daughter has CF and I would like to share my experience as a parent and learn from others in the CF Community.

Fun fact: I sat beside Bono once at a traffic light!

Newsletter Creator

As the mom of a child with cystic fibrosis, I joined the PFAC group as a way to connect with other CF family members and my daughter’s care team, while also having the opportunity to reach other NH families with the work we do.

Fun fact: My husband and I own a fitness center and we’ve hiked half of NH’s 4000 foot mountains (so far).

Bob Burnham

Moveapalooza Committee

I am a PFAC member as the father of an adult with CF. I will always be grateful for the care our family received from the team and I look forward to continuing work with the community.

Fun fact: I am long-time soccer fan and devoted supporter of Queens Park Rangers.